Transcript

Transcript of #ShitAbledPeopleSay thread, found here

• "You don't have a disability. It's just a little pain." I don't think you understand how much pain I'm actually in #ShitAbledPeopleSay
• I've had this chronic pain for over two years and it's only getting worse. There have been WEEKS where I haven't been able to sleep right
• All because of the pain I'm in. My wrist swells constantly, it changes temperature, and can go entirely numb for no actual reason.
• I'm currently on anti-depressants to try and control the pain. If this doesn't work, the next option I've been given is surgery on my hand.
• Before the surgery takes place I'll have to have an injection into the smaller nerves in my hand (and possibly wrist) which would numb them
• If that proves to be effective then I'll have surgery to REMOVE the smaller nerves/nerve endings from my hand
• I'm terrified, but it's all okay because "it's only a little pain" and nothing serious. And it's definitely NOT a disability in any way
• The definition of disability. A condition that limits movements or activities.

Photo: The definition of disability - taken from Google.

1. a physical or mental condition that limits a person's movements, senses, or activities.
2. a disadvantage or handicap, especially one imposed or recognized by the law.

• I can't do my job correctly because if my wrist goes then someone will end up hurt. Others are having to help me carry food I should carry
• If I'm holding a tray of five full plates and my wrist gives way, there is a high possibility of the tray landing on a young child
• I get that people don't see pain as a disability but chronic pain isn't like normal pain. I'm barely able to do what others can do with ease.

Thank you for reading my blog. If you are interested in finding out more about CRPS, then I have provided some links below:

According to www.nhs.co.uk: Complex Regional Pain Syndrome is a poorly understood condition in which a person experiences persistent severe and debilitating pain. Up to 1 in 3,800 people develop CRPS in the UK each year.

According to www.burningnightscrps.org: CRPS occurs when both the nervous system and immune system malfunction as they respond to any tissue damage from trauma. 

What Next?

Hey guys! Sorry I haven't been active for a while. Truth is, I've been stressing out over what may happen with my right wrist - the wrist with the confirmed CRPS.

I had a hospital appointment a few weeks ago, in regards to the CRPS. The consultant was not happy with my reaction to the Nortriptyline. I have been sleeping for several hours longer than expected which has resulted in me almost missing some very important appointments. Including the hospital appointment in which I saw the consultant.

He was not happy with me being on antidepressants, and I have an upcoming appointment with another consultant to discuss what can be done next. The idea that has been proposed is that I have an injection in the back of my hand. The injection should numb feeling in the smaller nerves (possibly nerve-endings) in my hand and my wrist. If this proves to be successful, I will undergo surgery to actually remove the nerves/nerve endings from my wrist.

This is a very scary prospect for me, as I am terrified of hospitals, The idea of actually removing nerves/nerve endings permanently has me very worried. A lot could wrong, but it could also do me a massive favour.

My next appointment is in just over two weeks, and when I know what is happening I will write another post.

Thank you for reading my blog. If you are interested in finding out more about CRPS, then I have provided some links below:

According to www.nhs.co.uk: Complex Regional Pain Syndrome is a poorly understood condition in which a person experiences persistent severe and debilitating pain. Up to 1 in 3,800 people develop CRPS in the UK each year.

According to www.burningnightscrps.org: CRPS occurs when both the nervous system and immune system malfunction as they respond to any tissue damage from trauma.